ACTION Learning Network investigators recently published Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation in the November 2022 issue of the ASAIO Journal. Examining […]
Check out the Berlin Heart One Page Summary (OPS). This OPS includes pump settings and function, cannulation strategies, blood pump and system components, power sources, as well as highlighting anticoagulation,
Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in
The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD):
Check out the newest One Page Summary (OPS) aimed to provide clear ideas to improve bivalirudin monitoring. It includes three ways to initiate infusion, plus what to look for if
Ideas to Improve Bivalrudin Monitoring OPS Read More »
ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors
Published on March 5, 2022, Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION focused on characterizing strokes in children with ventricular assist devices. This review included
Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION Read More »
From the moment Raylan was born, he fought for his life. Born with cardiomyopathy, Raylan was placed on the transplant list at seven weeks old. His parents, Bonnie and Craig, could only sit and wait for answers about their baby. After agonizing challenges, numerous roadblocks, and more than a few long nights, Bonnie and Craig brought their baby home and found a new community along the way.
A New Heart, A New Community: Raylan’s Story Read More »
At 11 days old, Juliana waited for a new heart while her mother, Riki, fought breast cancer. Together as mother and daughter, they faced unexpected challenges, braved mounting treatments, endured long waits and recovery. Now, Riki shares their story in thanks to the community of support they found along the way.
Finding Heart — Juliana’s Story Read More »
