Children's Hospital of Philadelphia Archives - Advanced Cardiac Therapies Improving Outcomes Network

The Pulse — February 2024

Let’s make 2025 our best year yet! We wrapped 2024 with the exciting announcement for the FDA expanded label of Johnson & Johnson MedTech’s Impella Support System to include treatment for certain children suffering from heart failure. Achievements like this would not be possible without the continued efforts and dedication of our ACTION centers providing care to these patients, as well as entering, cleaning, and adjudicating the data. We also continued access to the Berlin Heart Active Driver under the extended trial, and we published many new ACTION manuscripts.

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Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation

ACTION Publication, Publications

ACTION Learning Network investigators recently published Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation in the November 2022 issue of the ASAIO Journal. Examining

Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation Read More »

Rachel White

Member of the Month, Stories

Rachel White, BSN, RN, CCTC

The Children’s Hospital of Philadelphia

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Learning networks in pediatric heart failure and transplantation

ACTION Publication, Publications

“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research

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Establishing Baseline Metrics of Heart Failure Medication Use in Children

ACTION Publication, Publications

ACTION defines and collects pediatric heart failure metrics to implement quality improvement initiatives. This study sought to describe medication use at the time of discharge for children admitted with acute

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Greater Admissions, Mortality, and Cost of Heart Failure in ACHD

Other Publications, Publications

This study, published December 23, 2020 in Heart, compared outcomes and resource use among heart failure in adults with congenital heart disease and heart failure (ACHD-HF) vs. no ACHD: “Greater

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Berlin Heart EXCOR and ACTION Post-Approval Surveillance Study Report

ACTION Publication, Publications

Cerebrovascular accidents (CVA) are a common problem in pediatric VAD support. This Pedimacs analysis investigates rates, risk factors, and outcomes The field of pediatric mechanical circulatory support changed dramatically when

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Variation in Cardiac Rehabilitation for Pediatric VAD Recipients Across North America

ACTION Publication, Publications

There is little standardization across pediatric heart failure centers when it comes to the use of exercise testing and cardiac rehabilitation (CR) after VAD placement. “Variation in Cardiac Rehabilitation for

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Heart failure in children: Priorities and approach of the ACTION collaborative

ACTION Publication, Publications

This article summarizing ACTION’s heart failure initiatives was published in Progress in Pediatric Cardiology’s “Highlights of the 23rd Annual Update on Pediatric and Congenital Cardiovascular Disease: Vision 2020.” The article

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Early experience with the HeartMate 3 continuous-flow ventricular assist device in pediatric patients and patients with congenital heart disease

ACTION Publication, Publications

A MULTICENTER REGISTRY ANALYSIS The HeartMate 3™ LVAD was originally designed for use in adults with heart failure. This study, published in the Journal of Heart and Lung Transplantation on

Early experience with the HeartMate 3 continuous-flow ventricular assist device in pediatric patients and patients with congenital heart disease Read More »

Children's Hospital of Philadelphia

The Pulse — February 2024

Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation

Rachel White

Learning networks in pediatric heart failure and transplantation

Establishing Baseline Metrics of Heart Failure Medication Use in Children

Greater Admissions, Mortality, and Cost of Heart Failure in ACHD

Berlin Heart EXCOR and ACTION Post-Approval Surveillance Study Report

Variation in Cardiac Rehabilitation for Pediatric VAD Recipients Across North America

Heart failure in children: Priorities and approach of the ACTION collaborative

Early experience with the HeartMate 3 continuous-flow ventricular assist device in pediatric patients and patients with congenital heart disease

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