ACTION @ ISHLT ’23: Taking ACTION: Creation of a Prospective Registry of Boys with Dystrophinopathy and Ventricular Dysfunction to Define Cardiac Medication Use And Optimize Guideline Directed Medical Therapy
Abstract Now Available!
Carol Wittlieb-Weber
Initial multicenter experience with ventricular assist devices in children and young adults with muscular dystrophy: An ACTION registry analysis
Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in
Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD): Understanding Care Practices in Order to Optimize DMD Heart Failure Through ACTION
The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD):
The Influence of MCS on Post-Transplant Outcomes in Pediatric Patients
“The influence of mechanical circulatory support on post-transplant outcomes in pediatric patients” was published in the Journal of Heart and Lung Transplantation in June of 2021. The multicenter study from
The Influence of MCS on Post-Transplant Outcomes in Pediatric Patients Read More »
