ACTION Registry Archives - Advanced Cardiac Therapies Improving Outcomes Network

The Pulse — November 2024

Happy Fall to All! We had a successful meeting during the Single Ventricle Investigators Meeting in Denver this month, and it was great to see so many of you in person! Many new junior faculty and leaders of all experience levels have joined ACTION, and we are excited to continue our progress in the VAD, Heart Failure, Muscular Dystrophy, and Fontan spaces. We are grateful for the engagement and collaboration from all stakeholders that continue to excel our research, quality improvement, education, and advocacy efforts.

The Pulse — November 2024 Read More »

29th Annual Congress of World Muscle Society- ACTION Abstracts Poster Session

What: Poster Session When: Friday, October 11 from 2:15-3:15 pm Dystrophinopathy in ACTION; Analysis of the first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective

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The Pulse — July 2024

News, The Pulse

Dear Community, We hope you are enjoying your summer vacations and finding time to rest and rejuvenate with your families! ACTION has been busy with new publications, tools, and resources. Special thanks to the Muscular Dystrophy & Heart Failure committees for new harmonization protocols, and to the Fontan Referral Improvement Project leadership & committee for launching the Provider Grand Rounds deck for Advanced Therapeutic Options for Fontan Patients!

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The Pulse — April 2024

News, The Pulse

Happy New Year! We hope you enjoyed the Holiday Season and are energized for a new year! We wrapped 2023 with the launch of several exciting projects, such as the HeartMate 3^TM Discharge Bundle and Heart Healthy Video Series, we continued access to the Berlin Heart Active Driver under the extended trial, and we published new ACTION research. Looking ahead this year we have been meeting individually with all ACTION sites to ensure successful engagement in ACTION and highlight membership benefits for each center. We are excited to expand quality improvement, education, research, and best practice initiatives across the network, as well as engage with Global centers and increase advocacy efforts in the pediatric heart failure space. Reach out with any new ideas for the year ahead. Thank you for your continued efforts!

The Pulse — April 2024 Read More »

ACTION @ ISHLT ’24: Collective Five Year ACTION VAD Registry Experience

Friday, April 12th 4:36–4:40 PM Collective Five Year ACTION VAD Registry Experience Jonathan Edelson, MD, et al.

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ACTION @ ISHLT ’24: Explantation of Durable Ventricular Assist Device for Myocardial Functional Recovery in Children: A Report from The ACTION Registry

Friday, April 12th 3:00–3:10 PM Explantation of Durable Ventricular Assist Device for Myocardial Functional Recovery in Children: A Report from The ACTION Registry Bhavikkumar Langanecha, MD, et al.

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ACTION @ ISHLT ’24: Timing of Stroke in Children Supported by Ventricular Assist Devices – An ACTION Registry Report

Friday, April 12th 11:00–11:10 AM Timing of Stroke in Children Supported by Ventricular Assist Devices – An ACTION Registry Report Muhammad Farrukh Shezad, et al.

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The Pulse — January 2024

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The Pulse — January 2024 Read More »

The Pulse — October 2023

News, The Pulse

Happy Fall to All!
We had a successful meeting in St. Louis during the International HF/VAD Summit, and it was great to see so many of you in person! We brainstormed new ideas for QI/Research projects, clinical trials, education projects, advocacy efforts, and ways to improve data collection and project participation. We also played ACTION Trivia — did you know ACTION now has 66 sites in North America and has 27 manuscripts published since 2019? We are starting to plan for our next in-person meeting, which will be at CHOP in February 2024. Details to follow soon…

The Pulse — October 2023 Read More »