Purpose Cardiac disease results in significant morbidity and mortality in patients with muscular dystrophy (MD). Single centers have reported their ventricular assist device (VAD) experience in specific MDs and in […]
The results of an ACTION-wide survey of pediatric cardiology providers are detailed in the latest ACTION publication, Current Practices in Treating Cardiomyopathy and Heart Failure in Duchenne Muscular Dystrophy (DMD):
Though pediatric VAD use is increasing, data around outcomes related to patient treatment and device selection decisions is not yet robust enough to inform consistent practices among providers. The authors
Published on March 5, 2022, Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION focused on characterizing strokes in children with ventricular assist devices. This review included
Decreased Risk of Strokes in Children with Ventricular Assist Devices Within ACTION Read More »
Routine physical activity has been increasingly regarded as important for youth with cardiomyopathies or congenital heart disease with heart failure, including Fontan circulatory failure. This ACTION publication shows results of
Despite the fact that VADs are now regarded as an important treatment option in pediatric heart failure, most hospitals perform less than 10 VAD surgeries in children a year. “ISHLT
ISHLT Consensus Statement for the Selection and Management of Pediatric and CHD on VAD Read More »
“Learning networks in pediatric heart failure and transplantation” was published June 17, 2021 in Pediatric Transplantation. This ACTION publication defines “learning networks” and how they’re different from traditional clinical research
Learning networks in pediatric heart failure and transplantation Read More »
COVID 19 infection in children causes a hyper-inflammatory syndrome referred to as multisystem inflammatory syndrome in children (MIS-C). This ACTION publication, published June 2, 2021 in Pediatric Cardiology, provides a
MIS-C Associated with COVID-19 Anti-thrombosis Guideline of Care for Children Read More »
ACTION defines and collects pediatric heart failure metrics to implement quality improvement initiatives. This study sought to describe medication use at the time of discharge for children admitted with acute
Establishing Baseline Metrics of Heart Failure Medication Use in Children Read More »
Right heart failure (RHF) after LVAD implantation can negatively impact a child’s transplant candidacy and survival. Successful LVAD outcomes require anticipation, prevention, early identification, and management of RHF, but there
Right Heart Failure Considerations in Pediatric VADs Read More »
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