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Manuscripts Published
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Abstracts Accepted
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Harmonized Protocols
Manuscripts Published
- All
- 2018
- 2019
- 2020
- 2021
- 2022
- 2023
- 2024
- 2025
- ACTION Network
- Berlin Heart EXCOR®
- CardioMEMs
- CHD
- Consensus/Guidelines
- Donor Utilization
- Fontan
- Heart Failure
- HeartMate 3™
- Impella®
- Medicines
- Muscular Dystrophy
- Other Devices
- Other Pubs
- VADs
- All
- 2018
- 2019
- 2020
- 2021
- 2022
- 2023
- 2024
- 2025
- ACTION Network
- Berlin Heart EXCOR®
- CardioMEMs
- CHD
- Consensus/Guidelines
- Donor Utilization
- Fontan
- Heart Failure
- HeartMate 3™
- Impella®
- Medicines
- Muscular Dystrophy
- Other Devices
- Other Pubs
- VADs
Abstracts Accepted
- Use of SGLT-2 inhibitors in patients with Dystrophinopathy (Rachel Harris, et al) Cardiology 2025
- Arrhythmias in Pediatric Patients with Ventricular Assist Devices: A Multicenter Analysis from the ACTION Registry (Iman Fawad, et al) Heart Rhythm 2025
- SGLT2i in Congenital Heart Disease: An Analysis of the ACTION Heart Failure Registry (Monerah Alsaleh, MD, et al) ISHLT 2025
- Multi-Center Study Evaluating Outcomes of Right Heart Failure After Pediatric Left Ventricular Assist Device Implantation (Lindsey Brinkley, et al) ISHLT 2025
- Beta-Blocker Initiation in Pediatric Heart Failure (Victor Benvenuto, MD, et al) ISHLT 2025
- Long-Term Outcomes of Ventricular Assist Devices in Obese Pediatric Patients: An ACTION Registry Study (Kishore Raja, MD, et al) ISHLT 2025
- Current Global Trends and Challenges Utilizing Pediatric Ventricular Assist Devices: An ACTION Collaborative Survey (Ah-Young Kim, MD, et al) ISHLT 2025
- Impact of Antiplatelet Therapy on Outcomes in Berlin Heart EXCOR Patients (Spencer Brown, BSN, RN, CCRN, et al) ISHLT 2025
- Apixaban Anticoagulation for HeartMate 3 Ventricular Assist Device Support in Children and Young Adults: Action Analysis of Real World Utilization (Christina VanderPluym, MD, et al) ISHLT 2025
- Initial ACTION Multicenter Experience with Wireless Pulmonary Artery Pressure Monitoring in Children and Adults with Congenital Heart Disease (Jesse Esch, MD, MSc, et al) ISHLT 2025
- Evaluation of Gender Disparities Among Pediatric Patients with the Heartmate 3 Ventricular Assist Device (Anila Chaudhary, MD, et al) ISHLT 2025
- Berlin Heart EXCOR Outcomes in the Current Era: A Report from the ACTION Registry (Lydia Wright, MD, et al) ISHLT 2025
- A Contemporary Look at the Hazard of Stroke Across a Year of Support on Pediatric Paracorporeal VAD Support Using the ACTION Registry (Jenna Murray, CPNP-AC, MPH, et al) ISHLT 2025
- A Growing Understanding of Ventricular Assist Device Outcomes in Infants with Stage 1 Single Ventricle Palliation (Rachel Harris, DO, et al) ISHLT 2025
- Outcomes in Children Supported with Paracorporeal Continuous Compared to Paracorporeal Pulsatile Ventricular Assist Devices (Darren Turner, MD, et al) ISHLT 2025
- Characteristics and Outcomes of the Impella VAD in Pediatric Patients: A Report from the ACTION Learning Network (Jon Edelson, MD, et al) ISHLT 2025
- Global Collaborative to Review Stroke Events in Pediatric Ventricular Assist Device Support: ACTION Initiative (HaEun Kim, et al) ISHLT 2025
- Clinical Characteristics and Outcomes of Pediatric Destination Ventricular Assist Devices (Christopher Knoll, et al) ASAIO 2024
- Double Bridge to Heart Transplantation: Outcomes of Early vs Delayed ECMO Crossover in the Pediatric Population – An Analysis of the ACTION Registry (Raja, Kishore, et al) ISHLT 2024
- SGLT2i Use in Pediatric Heart Failure: Multicenter Study (Butts, Ryan, et al) ISHLT 2024
- VAD Support Can Effectively Bridge Pediatric Patients to Heart Re-Transplant: An ACTION Study (Lukich, Stevan, et al) ISHLT 2024
- External Validation of a Risk Score Assessment for Pediatric Ventricular Assist Device Mortality (Reaney, Meaghan, et al) ISHLT 2024
- The Outcomes of Temporary Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children; A Multicenter Study Using ACTION Learning Network (Moon, Jiyong, et al) ISHLT 2024
- Timing of Stroke in Children Supported by Ventricular Assist Devices – An ACTION Registry Report (Farrukh Shezad, Muhammad, et al) ISHLT 2024
- Explantation of Durable Ventricular Assist Device for Myocardial Functional Recovery in Children: A Report from The ACTION Registry (Langanecha, Bhavikkumar, et al) ISHLT 2024
- Collective Five Year ACTION VAD Registry Experience (Edelson, Jonathan, et al) ISHLT 2024
- Clinical Outcomes & Complications in Pediatric VADs Implanted as Bridge to Candidacy (Knoll, Christopher, et al) ISHLT 2024
- Patient-Reported Outcomes in Pediatric VAD Recipients: ACTION Findings Stratified by Device (May, Lindsay, et al) ISHLT 2024
- A Pediatric Heart Failure Registry: The Time for Action is Now (Spinner, Joseph, et al) ISHLT 2024
- Practice Variation in Anticoagulation Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers (Townsend, Madeleine, et al) ISHLT 2024
- Current State of Neurodevelopmental and Psychosocial Care Practices for Pediatric Patients with Ventricular Assist Devices: An ACTION and CNOC Collaborative Survey (Dusing, Catherine, et al) Cardiac Neurodevelopmental Outcome Collaborative 2024
- Dystrophinopathy in ACTION; Analysis of the first 500 males enrolled in the Advanced Cardiac Therapies Improving Outcomes Network prospective dystrophinopathy registry (Wittlieb-Weber, Carol, et al) World Muscle Society 2024
- Contemporary use of ventricular assist devices in Muscular Dystrophy: a report from the ACTION learning collaborative (Nandi, Deipanjan, et al) World Muscle Society 2024
- Impact of LVAD Support with Impella 5.5 to Bridge Adolescents to Heart Transplant – An Evolving Strategy (Buyukgoz, Cihangir, et al) PCICS 2024
- Oxygenator use in Ventricular Assist Devices from the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry (Rabinowitz, Edon, et al) PCICS 2024
- Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Outcomes Report ( Bonilla Ramirez, Carlos, et al.) ISHLT 2023
- Size Isn’t Everything: Survival for Very Small Infants Supported by VAD (Frandsen, Erik, et al.) ISHLT 2023
- Post-Stage 2 Palliation Single Ventricular Assist Device Outcomes: An Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry Analysis (Rabinowitz, Edon, et al.) ISHLT 2023
- Taking ACTION: Creation of a Prospective Registry of Boys with Dystrophinopathy and Ventricular Dysfunction to Define Cardiac Medication Use And Optimize Guideline Directed Medical Therapy (Wittlieb-Weber, Carol, et al.) ISHLT 2023
- A Pediatric Heart Failure Registry is Needed: A Time for ACTION (Spinner, Joseph, et al) ISHLT 2023
- Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from the ACTION Network (Nandi, Deipanjan, et al) ISHLT 2023
- What To Do With a Squeaky Wheel? Ventricular Assist Device Use in Children With Mechanical Valves In The ACTION Database (Hussain, Sabena, et al) ISHLT 2023
- Impact of Heartware VAD Discontinuation on the Pediatric Population-An Advanced Heart Failure Improving Outcomes (ACTION) Registry Analysis (Niebler, Rob, et al) ISHLT 2023
- Over 100 Fontan Patients on Ventricular Assist Device Support: An ACTION Update (Chen, Sharon, et al) ASAIO 2023
- Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: ACTION MCS Risk Score (Bonilla Ramirez, Carlos, et al) ASAIO 2023
- Impact of Mechanical Ventilation Duration on Outcomes in Children after Ventricular Assist Device Placement: A linked analysis from the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Cardiac Critical Care Consortium (PC4) Registries (Perry, Tanya, et al) ASAIO 2023
- Postoperative Anticoagulation With Bivalirudin Versus Heparin For HeartMate 3 in children (Bonilla Ramirez, Carlos, et al) ASAIO 2023
- VAD Discharge at Pediatric Centers- Why Can’t We Get Home? (Tunuguntla, Hari, et al) ASAIO 2023
- Impact of Ventricular Assist Device Use on Pediatric Heart Transplant Outcomes in a Linked Cohort of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) and Pediatric Heart Transplant Society (PHTS) Databases (Auerbach, Scott, et al) AHA 2023
- Reducing Donor Acceptance Practice Variation – Learnings from a Discussion Forum (Bansal, Neha, et al.) ISHLT 2022
- The Initial Analysis of Infectious Adverse Events in Pediatric Ventricular Assist Devices Reported to the ACTION Registry (Bansal, Neha, et al.) ISHLT 2022
- Taking ACTION: A Contemporary Prognostic Tool for Pediatric VAD Mortality (Boucek, Katerina, et al.) ASAIO 2022
- Outcomes after initial heart failure consultation n fontan patients (Chen, Sharon, et al.) ISHLT 2022
- Inter-Rater Reliability of Total Cardiac Volume Measurement for Heart transplantation: An ACTION Collaborative Study (Dykes, John, et al.) ISHLT 2022
- A Novel Approach To Pediatric Heart Failure Quality Improvement Within The ACTION Network (Godown, Justin, et al.) ISHLT 2022
- Outcomes Of Intracorporeal Continuous, Paracorporeal Continuous, And Paracorporeal Pulsatile Ventricular Assist Devices In Pediatric Patients 10-30 Kg (Lee, Jacqueline, et al.) ISHLT 2022
- Ventricular Assist Device in Pediatric Restrictive and Hypertrophic Cardiomyopathy: An Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Analyisis (Mokshagundam, Deepa, et al.) ISHLT 2022
- Feasibility of Implementation of a Heart Failure Communication Checklist in the Multi-Center ACTION Network (Simpson, Kathleen, et al.) ISHLT 2022
- Characteristics and outcomes of patients supported with impella percutaneous vad device at pediatric institutions: Action collaborative Experience (Tume, Sebastian, et al.) ISHLT 2022
- Bleeding – non CNS bleeding in VAD (Bansal, Neha, et al.) AHA 2021
- Promoting Discharges In Pediatric Patients With Congenital Heart Disease On Ventricular Assist DeviceSupport: An ACTION Quality Improvement Project (Bearl, David, et al.) AHA 2021
- ACTION PHIS Data for BiVal Resource Utilization Project (Burstein, Danielle, et al.) AHA 2021
- Pediatric Cardiac Potpourri (Burstein, Danielle, et al.) ISHLT 2021
- New Quality Improvement Initiatives In Pediatric Heart Failure Through The ACTION Collaborative Learning Network (Burstein, Danielle, et al.) ASAIO 2021
- DCM and discharge demographics info than report on slide 13/14 (Butto, Arene, et al.) AHA 2021
- Contemporary Use of Patient-Reported Outcomes (PROs) in Pediatric VAD Recipients: Feasibility in ACTION (Cousino, Melissa, May, Lindsay, et al.) ASAIO 2021
- Atrial Abstract/Is it True Less is More and Smaller is Better? Surgical Strategies in MCS (Dykes, John, et al.) ISHLT 2021
- Single Ventrical Patients/Outcomes of Infants and Children with Stage 1 Single Ventricle Implanted with Ventricular Assist Devices: An Analysis of the Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Registry (Joong, Anna, et al.) ISHLT 2021
- Influence of Patient Weight on VAD Outcomes in Pediatric and Young Adult Patients With Dilated Cardiomyopathy – An Analysis of the ACTION Registry (Kwiatkowski, David, et al.) ASAIO 2021
- Stroke QI – “When the Going Gets Tough: MCS Complications” (Murray, Jenna, et al.) ISHLT 2021
- Ventricular Assist Device Outcomes In Children And Young Adults With Muscular Dystrophy: An ACTION Analysis (Nandi, Deipanjan, et al.) ISHLT 2021
- Summary of Strokes/Small But Mighty: MCS in Pediatrics (Peng, David, et al.) ISHLT 2021
- Total Network Outcomes/The ACTION Quality Improvement Collaborative: 2020 Annual Report (Rosenthal, David, et al.) ISHLT 2021
- The Adjudication Process at ACTION – Providing Real-World High-Quality Data (Shezad, Muhammad, et al.) ISHLT 2021
- HVAD Usage and Outcomes in the Current Pediatric Ventricular Assist Device Field – An Advanced Cardiac Therapies Improving Outcomes Network Analysis (Auerbach, Scott, et al.) ASAIO 2020
- Discharge and Readmissions After Ventricular Assist Device Placement in the US Pediatric Hospitals (Bearl, David, et al.) ASAIO 2020
- Variation in Cardiac Rehabilitation for Pediatric Ventricular Assist Device Recipients Across North America (Burstein, Danielle, et al.) ASAIO 2020
- Significant Variation in Cardiac Rehabilitation For Pediatric Ventricular Assist Device Recipients Across North American: An ACTION Network Survey (Burstein, Danielle, et al.) ISHLT 2020
- The Fontan VAD Physiology Project (FVPP) (Cedars, Ari, et al.) ISHLT 2020
- Understanding Pediatric VAD Center Practices for Establishing and Maintaining Optimal Support (Donnellan, Amy, et al.) ISHLT 2020
- Preparing For Discharge In Pediatric Ventricular Assist Device Supported Patients (Elias, Barbara, et al.) ISHLT 2020
- Contemporary Berlin Heart EXCOR outcomes in North America: Report from the ACTION Registry (Lorts, Angela, et al.) ISHLT 2020
- “How are you doing?”: Patient and Family Support Resources for Children on Ventricular Assist Devices (Machado, Desiree, et al.) ISHLT 2020
- Barriers to Establishing and Maintaining Therapeutic Anticoagulation in Pediatric Ventricular Assist Device Support: Advanced Cardiac Therapies Improving Outcomes Network Initiative (Mehegan, Mary, et al.) ISHLT 2020
- Intracorporeal VAD Outcomes in the ACTION Quality Improvement Network (Sutcliffe, David, et al.) ISHLT 2020
- Current Discharge Practices In Pediatric Vad Patients: A Survey Of The ACTION Collaborative (Tunuguntla, Hari, et al.) ISHLT 2020
- The ABC’s of Reducing Stroke (Krack, Paige, et al.) IHI 2019
- Reducing pump thrombosis and stroke through impact of ACTION collaborative in children supported with pulsatile ventricular assist devices (Tume, Sebastian, et al.) PCICS 2019
Harmonized Protocols
- Antiplatelet Strategies for Paracorporeal VADs
- Berlin Heart Blood Pump Assessment & Exchange Guideline
- Berlin Heart Emergency Algorithms & Care – Pocket Guide
- Bleeding Protocol for Pediatric VADs
- Continuous Flow Paracorporeal VAD Circuit Change Guideline
- Compassionate Deactivation of Berlin Heart in Children
- Compassionate Deactivation of HeartWare HVAD in Children
- Compassionate Deactivation of HeartMate II or 3
- Compassionate Deactivation Mechanical Circulatory Support in Children
- Compassionate Deactivation MCS Checklist
- Compassionate Deactivation Pedimag & Centrimag
- Direct Thrombin Inhibitor (DTI) Harmonization Protocol for VADs
- Echo Protocol for Children with Implantable CF VADs
- Fontan VAD Management Protocol
- Impella Percutaneous Temporary VAD Management in Pediatric Patient
- Impella Percutaneous Temporary VAD Management – Abbreviated Points for Quick Reference
- Infection Prevention & Management: Antibiotic Prophylaxis for Pediatric VADs
- Infection Prevention & Management: Care of Cannula Site for Berlin Heart Pediatric VADs
- Infection Prevention & Management: Care of Driveline Exit Site for Implantable CF-VADs
- Infection Prevention & Management: Driveline & Cannula Site Infection Management for Pediatric VAD Patients
- Pediatric VAD Patient and Device Selection
- Pre-Implant Protocol for Pediatric Patients Evaluated for VADs
- Approach to Pump Thrombosis in Pediatric VADs
- Right Heart Failure Management for Pediatric VADs
- Steroids & Inflammation in Pediatric VADs
- Steps to Start a VAD Stroke Management Pathway
- SynCardia Total Artificial Heart (TAH-t) Management
- Transfusion Rationalization on Pediatric VADs
- VAD Nutrition
- Weaning & Explant Protocol for Pediatric VADs
- Considerations for Advanced Heart Failure Consultation in CHD Patients
- ACTION-PHTS-COVID-PMIS-T_MIS-C-Protocol
- Fitness Assessment and Promotion in Pediatric Heart Failure: Stable Post-VAD and Heart Failure
- Sodium-Glucose Costransporter-2 Inhibitors (SGLT2i)
- Considerations for Advanced Heart Failure Consultation in Fontan Patients
- Fontan PLE Protocol
- Fontan VAD Management Protocol
- Dystrophinopathy Ambulatory Electrophysiologic Monitoring Harmonization
- DMD Therapy Harmonization
- Dystrophinopathy Gene Therapy Diagnostic Harmonization
- CardioMEMS Prior Auth form
- CardioMEMS PTA Letter of Medical Necessity Template
- CardioMEMS Protocol
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