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Happy Fall! We are looking forward to seeing you virtually during our Fall Meeting on Tuesday, November 8, from 1–5pm ET. Registration details are included below. We have had a busy couple of months since our last newsletter in July, including the pilot launch of the Heart Failure registry, a successful Fontan Referral design meeting, and reaching over 1,000 patients entered into our VAD Registry. Join us for our Fall Meeting to see what’s coming for the rest of 2022! Regards,
April 18, 2022 | 3–6 PM
ACTION Spring 2023 Meeting
Save the date to join us
at ISHLT in Denver, CO!
More Info
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Cardinal Glennon Children’s Medical Center
St. Louis, MO - Vernat Exil, MD
- Corrine Tan, MD
- Erin Foristal, RN, BSN, CCTC
Holtz Children’s Hospital at Jackson Memorial Hospital
Miami, FL - Desiree Machado
- Paolo Rusconi
- Melvin Almodovar
- Terri Burguess
- Tara Keegan
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Meet Our Newest ACTION Team Members!
Katie Flaspohler joined the ACTION team in September as a Program Management Coordinator.
A message from Katie: CCHMC has always been on my *bucket list* of places to work. I graduated from the University of Dayton with a degree in Early Childhood Education, but I realized after two years of substitute teaching, that teaching was maybe not for me. I knew I still wanted to work in a place where learning/education were valued, so I took a position at the Cincinnati Zoo helping to plan corporate and social events. Most recently, I was with the American Heart Association supporting the Heart Mini and Cycle Nation campaigns. This feels like a natural landing place coming from the AHA for a few
reasons. Many of the families I knew through my time at the AHA were either current or former patients here and spoke so highly of their experience. Additionally, I had a college friend who had a heart transplant and had a VAD while he awaited his transplant. He passed about 6 years post-transplant, but the extra years he received, were incredible to witness. I am so passionate about the work being done here, and am excited to join the team and meet everyone. 🙂 A few fun’ish things about me:
I live on the Westside, have a husband and a dog, and I like to read, work out (any Orangetheory fans?!) and spend time outside!
Anaam Alzubi joined the ACTION team in August as the newest Sr. Data Analyst.
Why did you want to join ACTION?
The idea of working towards improving care for patients and their families was inspiring. I wanted to be part of this mission and learn from the community by using data science and machine learning methodologies. ACTION had the resources, support, and passion I would need to accomplish that. What’s your favorite part about ACTION?
I supported ACTION the moment I joined Cincinnati Children’s along with other learning networks, and I felt I belong ever since. I love how everyone is like a family, along with the focused mission, and the true teamwork. What are some things that you enjoy doing outside of work?
I love taking my kids out and doing activities together.
Carlos Bonilla Ramirez joined the ACTION team in August as a Research Fellow.
What is role at ACTION?
I am a research associate. Why did you want to join ACTION?
I want to pursue a career in Pediatric Heart Surgery, and ACTION is an example of applying innovation and collaboration to improve patient outcomes. What are some things that you enjoy doing outside of work?
I like playing guitar and reading short stories.
Miss the IRL VADs events?
Catch up on the Heart Failure Success webinars
Harmonized ProtocolsLogin to My ACTION Education to download the latest version of our Harmonized Protocols Document in the Provider ACTION Library>2. References> Protocols section. The updated HP features 2 NEW protocols:
1. Impella Percutaneous Temporary VAD Abbreviated Points for Quick Reference
2. Driveline and Cannula Care Infection Management for VADs (in the newly formed Infection Prevention & Management section under the VADs topic)
Melissa McQueen Executive Director / Founder Transplant Families
If you know someone that deserves a little recognition, please send us details!
The chosen ACTION Members of the Month receive a special ACTION swag item — and nominators will be entered into a quarterly raffle for a special prize!
Quality Improvement Updates
Aggregate network stroke data, updated September 2022. We sustained our initial efforts, see graphs below. New interventions coming soon.
Percent of patients who had a stroke with all devices (by first implant date)
Percent of patients who had a stroke with intracorporeal continuous flow device (by first implant date)
Percent of patients who had a stroke with paracorporeal continuous flow device (by first implant date)
Percent of patients who had a stroke with paracorporeal pulsatile flow devices (by first implant date)
57 HeartMate 3TM and Berlin Heart patients have been entered in the De-Escalation Project. 30 of the 57 patients achieved de-escalation before either 1. activation for transplant, 2. completing hospital course to discharge, or 3. receiving their transplant. Achieving de-escalation means the patient was extubated, off inotropes, ambulating or age equivalent, and stated feeds. This project is designed to encourage patient stability prior to transplant. It is also an effort to encourage discharge of patients on HeartMate 3TM.
Registry Database Updates
Simplified Clinical data as of 9/13/22
Total # VAD Patients Enrolled
DMD Initial Enrollment: 128
CardioMEMs Initial Enrollment: 12
Fontan Initial Enrollment: 88
If you need access to enter data, or have any questions please email us.
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