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Happy New Year! We hope you enjoyed the Holiday Season and are energized for a new year! We wrapped 2023 with the launch of several exciting projects, such as the HeartMate 3TM Discharge Bundle and Heart Healthy Video Series, we continued access to the Berlin Heart Active Driver under the extended trial, and we published new ACTION research. Looking ahead this year we have been meeting individually with all ACTION sites to ensure successful engagement in ACTION and highlight membership benefits for each center. We are excited to expand quality improvement, education, research, and best practice initiatives across the network, as well as engage with Global centers and increase advocacy efforts in
the pediatric heart failure space. Reach out with any new ideas for the year ahead. Thank you for your continued efforts! Regards,
Cohen Children's Medical Center
Queens, New York - Jeffrey Gossett, MD
- Jake Kleinmahon, MD
- Olga Shamailova, CRC
UVA Health Children’s
Charlottesville, Virginia - James Gangemi, MD
- Firezer Haregu, MD
- Tom L’Ecuyer, MD
- Michael McCulloch, MD
- Deanna Pototschnik, MSN, RN, CCRN
- Shelby White, MD
Nominate an ACTION Member
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12th Annual Utah Cardiac Recovery Symposium (U-CARS)
February 8–9, 2024 | Salt Lake City, Utah
More Info
RSVP to Join us for the ACTION Spring Meeting! co-presented by
Advanced Cardiac Therapies for Fontan Patients
February 16, 2024 | 2–5pm
Scottsdale, AZ
(during CHOP Cardiology 2024 – Location TBD) See Graphic below.
CHOP - Cardiology 2024
27th Annual Update on Pediatric and Congenital Cardiovascular Disease Conference
February 15–19 | Scottsdale, AZ
Conference Info
ISHLT - April 2024
44th Annual Meeting & Scientific Sessions of the ISHLT
Prague, Czech Republic
More to follow | Conference Info
ASAIO - May 2024
American Society for Artificial Internal Organs – 69th Annual Conference
May 29– June 1 | Baltimore, MD
More to follow | Conference Info
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Reflecting on our top posts from this past year, we're reminded of the impact of our collective effort! These were the social media posts that resonated the most with our followers.
ACTION @ ISHLT
Look Who’s Talking in Prague
Kishore Raja, MD: Double Bridge to Heart Transplantation: Outcomes of Early vs Delayed ECMO Crossover in the Pediatric Population - An Analysis of the ACTION Registry, Kishore Raja, MD, et al. Ryan Butts, MD: SGLT2i Use in Pediatric Heart Failure: Multicenter Study, Ryan Butts, MD, et al. Stevan Lukich, MD: VAD Support Can Effectively Bridge Pediatric Patients to Heart Re-Transplant:
An ACTION Study, Stevan Lukich, MD, et al. Meaghan Reaney, DO: External Validation of a Risk Score Assessment for Pediatric Ventricular Assist Device Mortality, Meaghan Reaney, DO, et al. Jiyong Moon, BM: The Outcomes of Temporary Mechanical Circulatory Support Using Paracorporeal Continuous Flow Pump in Children; A Multicenter Study Using ACTION Learning Network, Jiyong Moon, BM, et al. Muhammad Farrukh Shezad: Timing of Stroke in Children Supported by Ventricular Assist
Devices - An ACTION Registry Report, Muhammad Farrukh Shezad, et al. Bhavikkumar Langanecha, MD: Explantation of Durable Ventricular Assist Device for Myocardial Functional Recovery in Children: A Report from The ACTION Registry, Bhavikkumar Langanecha, MD, et al. Jonathan Edelson, MD: Collective Five Year ACTION VAD Registry Experience, Jonathan Edelson, MD, et al. Christopher Knoll, MD: Clinical Outcomes & Complications in Pediatric VADs Implanted as Bridge to
Candidacy, Christopher Knoll, MD, et al. Lindsay May, MD: Patient-Reported Outcomes in Pediatric VAD Recipients: ACTION Findings Stratified by Device, Lindsay May, MD, et al. Joseph Spinner, MD: A Pediatric Heart Failure Registry: The Time for Action is Now, Joseph Spinner, MD, et al. Madeleine Townsend, MD: Practice Variation in Anticoagulation Management of Outpatient Pediatric Cardiomyopathy Patients: Survey of ACTION Providers, Madeleine Townsend, MD, et
al.
Stay tuned for final presentation dates and times on our social media, as well as an ACTION schedule of ISHLT events as we get closer to the ACTION meeting at ISHLT.
Heart Healthy Video Series
Brought to you by the ACTION team, starring Justine Shertzer, a pediatric exercise physiologist and a member of ACTION, and Julian Lerner, an actor, singer, musician, and ACTION Ambassador. These videos are intended to be used by both healthy kids and heart patients, under the advisement of their care team. Have your patients head over to the MyACTIONEducation.org Patient and Families’ Health and Wellness > Fitness section to see all the videos. Follow along with these
exercises and do them in sets for extra heart health benefits!
The IDECIDE pilot project has been completed!
The IDecide VAD decision aid booklet is available for use in English and Spanish. It was designed for pediatric patients and their families to help them better understand VADs and determine which one is right for their unique situation. Contact us for any questions or feedback.
Quality Improvement Updates
Data as of January 11, 2024
147 HeartMate 3TM and Berlin Heart patients have been entered in the De-Escalation Project. 90 of the 147 patients achieved de-escalation before either 1. activation for transplant, 2. completing hospital course to discharge, or 3. receiving their transplant. Achieving de-escalation means the patient was extubated, off inotropes, ambulating or age equivalent, and stated feeds. This project is designed to encourage patient stability prior to transplant. It is also an effort to encourage discharge of patients on HeartMate 3TM.
ACTION Providers – We have everything you need in our NEW Discharge Bundle for educating HeartMate 3TM Patients and families, prepping for discharge, and returning patients to their daily lives, including a community packet, travel packet, and back-to-school packet. All materials are available on the Provider side of MyActionEducation.org
Registry Database Updates
Simplified Clinical data as of January 17, 2024
Total # Patients Enrolled 1,502
Total # Patients Enrolled 673
Total # Patients Enrolled 101
Total # Patients Enrolled 392 Meds Titration: 18
CardioMEMS: 28
Apple Watch: 11
If you need access to enter data, or have any questions please email us.
Are you using SGLT2 Inhibitors or CardioMEMSTM?
Open Positions in ACTION Centers
Children’s Hospital of Colorado
Denver, ColoradoLooking for: Medical Director for the Single Ventricle Program
This position will provide strategic medical leadership and direction for operations across clinical care, research, and education related to single ventricle heart disease.
Responsibilities: Work collaboratively with Heart Institute (H.I.) leadership team to develop and operationalize growth strategies and priorities. Partner with other specialties (cardiac surgery, gastroenterology, pulmonology, psychology, etc.) as needed to holistically serve single ventricle patients. Ensure physician coverage of clinical services. Will direct the efficient management of provider schedules to maximize resources, access, and patient satisfaction. Partner with service line leadership, physician relations, business development on the creation and promotion of outreach education and outreach visits to expand market share and grow the program’s regional and national reputation. Develop, implement, and ensure compliance with appropriate clinical standards and best practices, which may include development of clinical pathways, algorithms, or
protocols applicable to patients served. To Apply: To learn more and apply, see the full job posting.
Email Contact: Dr. Shelley Miyamoto, Division Chief of Cardiology
The University of Texas Southwestern Medical Center
Children’s Medical Center of Dallas
Dallas, TexasLooking for: Advanced Heart Failure & Transplant Cardiologist (Heart Failure, Mechanical Circulatory Support and Transplantation)
Applicants should be board certified/board eligible in Pediatrics and Pediatric Cardiology and have finished a three year pediatric cardiology fellowship as well as an advanced pediatric heart failure and transplantation fellowship at an accredited ACGME institution.
Responsibilities: The candidate will carry out regular attending duties within the Division of Cardiology and the section of Advanced Heart Failure/VAD/Transplant, as well as participate in teaching and training of fellows, house staff, and medical students. Candidate will be superior in all aspects of Cardiology and Advanced heart failure/Transplant cardiology. To Apply: To learn more and apply, see the full job posting.
Email Contact: Dr. Ryan Butts
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