|
Dear Community, It was great to see many of you at ISHLT this month! Congratulations to the many authors and co-authors involved in the ACTION abstracts shared at ISHLT (details below). We had over 100 members at the ACTION meeting who worked together to align Adverse Event definitions and learn about our new initiative—ACTION Global. The launch of ACTION Global is an expanded effort to involve more international sites with an end goal of improving patient outcomes globally by sharing data and practices around the world. We are already excited and planning for the
Fall 2023 ACTION Meeting at the International Pediatric VAD and Heart Failure Summit in September. See more summit info below and stay tuned for meeting details in upcoming Forecast emails. Thank you for your continued efforts! Regards,
2023 Pediatric Transplant Conference
April 26–28 | Virtual
More info
International Pediatric VAD & Heart Failure Summit
September 22–23 | St. Louis, MO
More info | Register SAVE THE DATE!
ACTION Fall 2023 Meeting
September 21 | St. Louis, MO
(before the VAD Summit—see above)
More info to come...
|
Oklahoma Children’s Hospital - OU Health Heart Center
Oklahoma City, Oklahoma - Emily Auld, PA-C
- Rachel Blalack, LMSW
- Amanda Bower, RD/LD
- Victoria Brooks, PA-C
- Klayton Buckley
- Harold Burkhart, MD
- Cassandra Childers
- R. Erik Edens, MD, PhD
- Rachel Eudey, BSN, RN, CCRN-K,
CPN
- Julie Hamilton, RN, BSN, CNOR
- Jennifer Le, PharmD
- Dennis Martin, RN
- Rosalee Murphy, RN
- Yuki Nakamura, MD
- Linda Perron, DNP, APRN, PCNS-BC, CCRN-L
- Melissa Rice, RN
- Carmen Taylor, RN, MS, APRN, NNP
- Emily Wilhelm, RN, MS, APRN, CPNP-PC
|
International Pediatric VAD & Heart Failure Summit
September 22–23, 2023
St. Louis, MOThe Heart Center at St. Louis Children’s Hospital and Washington University School of Medicine are excited to invite you and your colleagues to the return of the International Pediatric VAD and Heart Failure Summit. This event will be held in the Eric P. Newman Education Center on the campus of the Washington University Medical Center. This summit is presented in collaboration with Boston Children’s Hospital, Stanford Medicine Children’s Health, Cincinnati Children’s, The Hospital for Sick Children Toronto, Children’s Hospital of Los Angeles, and Texas Children’s Hospital Houston. For more information, including agenda, faculty, poster submission,
lodging and registration, visit: https://cme.wustl.edu/go/vad2023
Thursday, September 21Prior to the formal meeting, ACTION will host a working meeting for anyone who would like to attend on Thursday, Sept. 21st in the evening. More information to come. Friday, September 22Berlin Heart will be hosting an evening dinner reception at the Chase Park Plaza Hotel, Friday, Sept. 22, in celebration of the 25th anniversary of the availability of the Berlin Heart in North America.
Thank you to everyone who attended the ACTION Spring Meeting!
We were so thrilled to see over 100 ACTION members last week at the Spring meeting. In case you missed us at ISHLT we've posted the slide deck for review.
Congratulations to all the ACTION presenters @ ISHLT!
- Carlos Bonilla Ramirez — “Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Outcomes Report, Carlos Bonilla Ramirez, MD, et al.”
- Erik Frandsen — “Size Isn’t Everything: Survival for Very Small Infants Supported by VAD, Erik Frandsen, MD, et al.”
- Edon Rabinowitz — “Post-Stage 2 Palliation Single Ventricular Assist Device Outcomes: An Advanced Cardiac Therapies Improving Outcomes
Network (Action) Registry Analysis, Edon Rabinowitz, MD, et al.”
- Carol Wittlieb-Weber — ”Taking ACTION: Creation of a Prospective Registry of Boys with Dystrophinopathy and Ventricular Dysfunction to Define Cardiac Medication Use And Optimize Guideline Directed Medical Therapy, Carol Wittlieb-Weber, MD, et al.”
- Joseph Spinner — “A Pediatric Heart Failure Registry is Needed: A Time for ACTION, Joseph Spinner, MD, et al.”
- Deipanjan Nandi — “Suboptimal Titration of Heart Failure Medications in
Pediatric Patients: Baseline Data from the ACTION Network, Deipanjan Nandi, MD, MSc, FAAP, FACC, et al.”
- Sabena Hussain — “What To Do With a Squeaky Wheel? Ventricular Assist Device Use in Children With Mechanical Valves In The ACTION Database, Sabena Hussain, MD, MSc, et al.”
- Rob Niebler — “Impact of Heartware VAD Discontinuation on the Pediatric Population-An Advanced Heart Failure Improving Outcomes (ACTION) Registry Analysis, Rob Niebler, MD, et al.”
Excellent outcomes, for our patients and families, remains the cornerstone of ACTION. By bidirectional sharing of experiences across the globe, we will bring new knowledge and therapies to the bedside, standardize processes to decrease unnecessary variation, change the culture to ensure engagement and prioritize resources to improve the outcomes that matter most to our patient and families. ACTION’s first step is to connect with interested sites around the world to learn about their current infrastructure and practices to optimize how we learn and share with each other. Do you know international providers or sites that may be interested in participating? Do you have ideas for how
ACTION can best expand globally? Email us: info@actionlearningnetwork.org
Quality Improvement Updates
Aggregate network stroke data, updated April 5, 2023.
We sustained our initial efforts, see graphs below. The leaders are working on a High-Risk bundle intervention that will be rolling out for testing soon!
Percent of patients who had a stroke with all devices (by first implant date)
Percent of patients who had a stroke with intracorporeal continuous flow device (by first implant date)
Percent of patients who had a stroke with paracorporeal continuous flow device (by first implant date)
Percent of patients who had a stroke with paracorporeal pulsatile flow devices (by first implant date)
88 HeartMate 3TM and Berlin Heart patients have been entered in the De-Escalation Project. 54 of the 88 patients achieved de-escalation before either 1. activation for transplant, 2. completing hospital course to discharge, or 3. receiving their transplant. Achieving de-escalation means the patient was extubated, off inotropes, ambulating or age equivalent, and stated feeds. This project is designed to encourage patient stability prior to transplant. It is also an effort to encourage discharge of patients on HeartMate 3TM.
Patients and parents told us how they’re feeling post-VAD implant.
167 surveys were completed from 6/8/21 through 3/31/23.
See the Visual Analog Scale results below.
Registry Database Updates
Simplified Clinical data as of April 5, 2023
Total # Patients Enrolled 1,235
Total # Patients Enrolled 275
Total # Patients Enrolled 86
Total # Patients Enrolled 153 Meds Titration: 16
CardioMEMS: 25
Apple Watch: 4
If you need access to enter data, or have any questions please email us.
Open Positions in ACTION Centers
Children's Heart Center/University of Mississippi
Jackson, MississippiLooking for: BE/BC pediatric cardiologist at the assistant or associate professor level to fill a non-tenure eligible position
Responsibilities: The candidate is expected to lead our CHF/Transplant Program which is supported by our Fetal Heart Center, strong Interstage Program, the critical care cardiology team and Neonatal ICU. Research performance is expected and opportunities currently exist for collaboration. Candidates should possess outstanding clinical and teaching skills. Candidates are expected to participate in the educational and research endeavors of the Division that supports active fellowship programs in Pediatric and Adult Cardiology, Adult Congenital Heart Disease, Adult Interventional and Adult Advanced Heart Failure/Transplantation. The current ACGME-accredited Pediatric Cardiology Fellowship Program includes six fellows.. To Apply: To learn more and apply, see
the full job posting.
Email Contact: Dr. William B. Moskowitz
Methodist Le Bonheur Healthcare
Memphis, TNLooking for: Pediatric Transplant and VAD Coordinator
Responsibilities: - Coordinates all phases of VAD implantation and heart transplantation
- Provides overall coordination for the multidisciplinary team involved in VAD implantation and heart transplantation
- Assures appropriate care during and after VAD implantation and heart transplantation
- Implements and directs programs related to VADs and Heart Transplants
- Demonstrates initiative in identifying opportunities for self-development, clinical competency, and
knowledge of new departments, treatment and procedures
To Apply: To learn more and apply, see the full job posting.
Email Contact: Amber Merritt
|
