Heart of ACTION

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

An expert opinion statement, addressing a critical gap in cardiac care for Duchenne muscular dystrophy – providing thorough recommendations for the initiation and titration of cardiac medications based on disease progression and patient response.

ACTION Publication Publications

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

March 25, 2025

ACTION Publication Publications

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

February 28, 2025

Patient Stories Stories

Owen’s Story: A Journey of Resilience and Hope

February 7, 2025

News The Pulse

The Pulse — February 2024

February 4, 2025

News Updates

Understanding Genetics

January 29, 2025

ACTION Publication Publications

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

January 8, 2025

ACTION Publication Publications

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

December 30, 2024

ACTION Publication Publications

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

December 29, 2024

ACTION Publication Publications

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

December 22, 2024

ACTION and Johnson & Johnson Med Tech Press Release

News Press Release

ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients

December 12, 2024

ACTION Publication Publications

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

December 11, 2024

ACTION Publication Publications

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024

ACTION Publication Publications

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024

ACTION Publication Publications

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024

News Updates

HeartMate 3™ LVAD Patient Education Handbook – UPDATED!

November 13, 2024

News The Pulse

The Pulse — November 2024

November 8, 2024

ACTION Publication Publications

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024

ACTION Publication Publications

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024

Heart Failure Patient and Family Education Handbook

News Updates

NEW! Heart Failure Success Patient & Family Education Handbook

September 9, 2024

News The Pulse

The Pulse — July 2024

July 31, 2024

News Updates

A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!

July 22, 2024

ACTION Publication Publications

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024

ACTION Publication Publications

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

May 20, 2024

ACTION Publication Publications

Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg

May 20, 2024

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Heart of ACTION

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

Latest Highlights

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

Owen’s Story: A Journey of Resilience and Hope

The Pulse — February 2024

Understanding Genetics

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

HeartMate 3™ LVAD Patient Education Handbook – UPDATED!

The Pulse — November 2024

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

NEW! Heart Failure Success Patient & Family Education Handbook

The Pulse — July 2024

A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg

Looking for Something?

Catch up on the latest ACTION achievements.

We would love to add you to our The Pulse eNewsletter mail list!

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