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Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

This report reviews the strengths and limitations of the ACTION registry (which collects data and adjudicates adverse events on pediatric patients receiving mechanical circulatory support at 48 participating centers) to ensure optimal utility among pediatric patients receiving mechanical circulatory support. It also suggests potential areas for improvement to facilitate best care of this vulnerable population.

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ACTION and Johnson & Johnson Med Tech Press Release
NewsPress Release

ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients

December 12, 2024
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
ACTION PublicationPublications

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024
ACTION PublicationPublications

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024
VADs Device Score
ACTION PublicationPublications

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024
NewsUpdates

HeartMate 3™ LVAD Patient Education Handbook – UPDATED!

November 13, 2024
NewsThe Pulse

The Pulse — November 2024

November 8, 2024
ACTION PublicationPublications

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024
ACTION PublicationPublications

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024
Heart Failure Patient and Family Education Handbook
NewsUpdates

NEW! Heart Failure Success Patient & Family Education Handbook

September 9, 2024
The Pulse eNewsletter July 2024
NewsThe Pulse

The Pulse — July 2024

July 31, 2024
NewsUpdates

A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!

July 22, 2024
ACTION PublicationPublications

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
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