Publications

Manuscripts Published
2018(1)
2019(1)
2020(6)
2021(10)
2022(5)
2023(10)
2024(14)
2025(5)
Berlin Heart EXCOR®(4)
CHD(9)
Consensus/Guidelines(7)
Donor Utilization(2)
Fontan(7)
Heart Failure(12)
HeartMate 3™(3)
Impella®(1)
Medicines(3)
Muscular Dystrophy(4)
Other Devices(4)
Other Pubs(4)
VADs(35)
2025

Capturing Physiologic Data in Children with Heart Failure Using Wearable Digital Technology: Lessons From Pilot Project

April 4, 2025
2025

The ACTION VAD registry: A collective five-year experience

April 2, 2025
2025

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

March 25, 2025
2025

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

February 28, 2025
2025

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

January 8, 2025
2024

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

December 30, 2024
2024

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

December 29, 2024
2024

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

December 22, 2024
2024

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

December 11, 2024
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
2024

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024
2024

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024
VADs Device Score
2024

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024
2024

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024
2024

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024
2024

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
2024

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

May 20, 2024
2024

Outcomes of Intracorporeal Continuous and Paracorporeal Pulsatile Ventricular Assist Devices in Pediatric Patients 10–30 kg

May 20, 2024
2024

Multicenter outcomes for ventricular assist device support for failed stage II palliation

February 29, 2024
2024

Impact of HeartWare VAD discontinuation on the pediatric population: An ACTION registry analysis

February 23, 2024
2023

Outcomes after initial heart failure consultation in Fontan patients

December 7, 2023
2023

Reducing donor acceptance practice variation – Learnings from a discussion forum

November 14, 2023
2023

Clinical Outcomes of SARS-CoV-2 Infection in Pediatric Patients on Ventricular Assist Device Support: An Action Registry Analysis

October 31, 2023
Telehealth
2023

Successful Implementation of Telehealth Visits in the Paediatric Heart Failure and Heart Transplant Population

August 10, 2023
2023

Taking ACTION: A Prognostic Tool for Pediatric Ventricular Assist Device Mortality

July 25, 2023
2023

Expanding Use of the HeartMate 3 VAD in Pediatric and Adult Patients within ACTION

July 11, 2023
2023

Impact of Weight on Ventricular Assist Device Outcomes in Dilated Cardiomyopathy Patients in Pediatric Centers: An ACTION Registry Study

May 1, 2023
Teenager Fontan Referral
2023

Considerations for Advanced Heart Failure Consultation in Individuals With Fontan Circulation: Recommendations From ACTION

February 22, 2023
2023

Patient and Parent-Reported Outcomes in Paediatric VAD Support: A Multi-Center ACTION Learning Network Feasibility and Pilot Experience

February 2, 2023
2023

End-of-Life in Pediatric Patients Supported by Ventricular Assist Devices: A Network Database Cohort Study

January 1, 2023
2022

Ventricular Assist Device Outcomes in Infants and Children With Stage 1 Single Ventricle Palliation

November 29, 2022
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