Ideas to Improve Bivalrudin Monitoring OPS
Check out the newest One Page Summary (OPS) aimed to provide clear ideas to improve bivalirudin monitoring. It includes three ways to initiate infusion, plus what to look for if …
The Pulse — July 2022
It has been a few months since our last newsletter. We are trying a new communication method: a “Forecast” email goes out every two weeks with important dates, meetings and resources; and newsletter, which now include data visualizations, will be distributed quarterly.
Parent Project Muscular Dystrophy (PPMD) funds ACTION to expand Muscular Dystrophy collaboration efforts
ACTION receives $2 million grant from Parent Project Muscular Dystrophy (PPMD) to expand muscular dystrophy focused research and quality improvement initiatives
Improving Treatment & Outcomes for Children with Muscular Dystrophy
Patients with Muscular Dystrophy may develop cardiac dysfunction and may need advanced cardiac therapies. These therapies may include medications, ventricular assist devices or new technology for monitoring. Quality improvement and research methodologies are being used to improve the cardiac outcomes of this patient group.
Fontan Referral for Advanced Care
Patients with Fontan physiology may develop symptoms that require life-saving cardiac care such heart failure medicines, VAD support and/or transplantation. ACTION is working on timely referral for this cohort which is extremely important for optimal outcomes.
Education for Patients, Families, and Providers
We continually work to improve and develop educational resources on heart failure and advanced therapies, such as VADs. Our materials, both written and electronic, are designed for a wide variety of user groups including patients, caregivers, and clinical providers.
Harmonizing Care: Decreasing Unnecessary Variation in Care
Decreasing unnecessary variation in care has been extremely important to best outcomes. We learn from each other and alter care as a network.
Innovative Technologies for Monitoring Children with Heart Failure
We are using innovation to monitor our patients more effectively. Projects include the use of wearable devices and the off-label use of the CardioMEMsTM device and electronic collection of patient reported outcomes.
Preparing Patients for Transplant & Maximizing Donor Acceptance
Transplant outcomes are improved if patients are strong going into the surgery. We have many projects focused on the right time for transplantation. Donor availability is an ACTION priority and can be improved by sharing experiences on donor acceptance and perfecting best donor recipient size match.
