Heart of ACTION

The ACTION VAD registry: A collective five-year experience

A report describing patient and device characteristics, and outcomes through 1-year post-VAD implant. The 5-year ACTION VAD experience highlights the growing collaboration in the pediatric VAD community and changes in clinical practice. More work is needed to improve survival and limit adverse outcomes, especially in younger patients.

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ACTION PublicationPublications

The ACTION VAD registry: A collective five-year experience

April 2, 2025
ACTION PublicationPublications

Bridging gaps in pediatric device development: The power of ACTION – a collaborative learning network

March 25, 2025
ACTION PublicationPublications

Cardiac treatment for Duchenne muscular dystrophy: consensus recommendations from the ACTION muscular dystrophy committee

February 28, 2025
Patient StoriesStories

Owen’s Story: A Journey of Resilience and Hope

February 7, 2025
The Pulse eNewsletter - February 2025
NewsThe Pulse

The Pulse — February 2024

February 4, 2025
NewsUpdates

Understanding Genetics

January 29, 2025
ACTION PublicationPublications

Outcomes for Children With Congenital Heart Disease Undergoing Ventricular Assist Device Implantation: An ACTION Registry Analysis

January 8, 2025
ACTION PublicationPublications

Taking ACTION to detect myocarditis related to recombinant gene transfer therapy for Duchenne Muscular Dystrophy; Consensus recommendations for cardiac surveillance

December 30, 2024
ACTION PublicationPublications

Over 100 Fontan Patients on Systemic Ventricular Assist Device Support: An ACTION Update

December 29, 2024
ACTION PublicationPublications

Ventricular assist device implantation in children with a mechanical valve: An ACTION registry analysis

December 22, 2024
ACTION and Johnson & Johnson Med Tech Press Release
NewsPress Release

ACTION Centers Collaborate with Johnson & Johnson MedTech to Secure FDA Labeling for Impella Support System in Pediatric Patients

December 12, 2024
ACTION PublicationPublications

Current state of neurodevelopmental and psychosocial care practices for paediatric patients with ventricular assist devices: an Advanced Cardiac Therapies Improving Outcomes Network and Cardiac Neurodevelopmental Outcome Collaborative collaborative survey

December 11, 2024
Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience
ACTION PublicationPublications

Adjudicating Registry Data: Benefits and Pitfalls – The ACTION Experience

December 10, 2024
ACTION PublicationPublications

Suboptimal Titration of Heart Failure Medications in Pediatric Patients: Baseline Data from ACTION

November 26, 2024
VADs Device Score
ACTION PublicationPublications

Development and Validation of a Novel Pediatric Mechanical Circulatory Support Risk Stratification Tool: The Advanced Cardiac Therapies Improving Outcomes Network (ACTION) Ventricular Assist Device Score

November 26, 2024
NewsUpdates

HeartMate 3™ LVAD Patient Education Handbook – UPDATED!

November 13, 2024
NewsThe Pulse

The Pulse — November 2024

November 8, 2024
ACTION PublicationPublications

Pediatric Learning Health Networks in Solid Organ Transplantation—Engaging all Stakeholders to Achieve Health for Children Who Require Transplantation

October 28, 2024
ACTION PublicationPublications

ACTION-ARC Pediatric and Adult Congenital Heart Disease Ventricular Assist Device Adverse Event Definitions-2023

October 15, 2024
Heart Failure Patient and Family Education Handbook
NewsUpdates

NEW! Heart Failure Success Patient & Family Education Handbook

September 9, 2024
The Pulse eNewsletter July 2024
NewsThe Pulse

The Pulse — July 2024

July 31, 2024
NewsUpdates

A new HeartMate 3™ LVAD Patient Education Handbook for ADULTS is Now Available!

July 22, 2024
ACTION PublicationPublications

Mechanical Ventilation and Outcomes of Children Who Undergo Ventricular Assist Device Placement: 2014–2020 Linked Analysis From the Advanced Cardiac Therapies Improving Outcomes Network and Pediatric Cardiac Critical Care Consortium Registries

May 20, 2024
ACTION PublicationPublications

Transcatheter Axial Pump Use in Pediatric Patients on Veno-Arterial Extracorporeal Membrane Oxygenation: An ACTION Collaborative Experience

May 20, 2024
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